I’m Jasmine, and I have a rare lung condition called PCD, which is short for Primary Ciliary Dyskinesia. That means my cilia (AKA my nose hairs and ear hairs) don’t function like most people’s. My cilia don’t help my body clear out mucus and bacteria so basically I must do it myself.
Read MoreBeckett is a precocious little 11-year old. He likes to sneak up on people, enjoys competitive diving, and adores all plants and animals. He is also lives with Cystic Fibrosis.
Read MoreLincoln, who is nearly 4, is just full of life. The first thing you need to know about Lincoln is that he's a hard worker. Every day, he helps his Mommy out on the horse farm doing chores: feeding, slinging rocks out of the way, and even raking poo. He loves tacking up his miniature horse, Hercules, and is always excited to help with anything the farm needs.
Read MoreSophie has got to be the kindest, cheeriest, most mature little 9 year old that you will ever meet. She loves to run and play with her friends, and always puts 110 % effort into anything she does. She loves to bake and is a talented artist and painter. She excels in school, and is a friend to everyone she meets.
Read MoreAnna is very special for so many reasons - most importantly her HUGE personality. She is a little one who is a mix of all the best things in this world: easy going, happy, loving. In school, she's the Queen Bee! Everyone comes looking for her, especially when they are having a bad day as Anna's calm nature lifts their spirits.
Read MoreWe were ecstatic when we learned that we were expecting. For months we thought of what we would name our beloved boy. Finally, we decided on Ethan Leon. Ethan - just because, and Leon - because we loved Lions. We knew we were naming our boy after an animal symbolic for strength and courage. Little did we know though, how soon he would prove to live up to it.
Read MoreOn November 25, 2017, our world was turned upside down. Our son Logan, who was 5 at the time, was diagnosed with T-Cell Non Hodgkins Lymphoblastic Lymphoma. Late in the night he had kept saying his throat hurt and felt funny. We let him sleep with us and are beyond thankful we did. A few short hours later he was panicking and jumped out of bed and tried to let out a cry but couldn’t. We very quickly turned the light on to find him blue and unable to breathe.
Read MoreAt the very beginning of this long journey we were told about The Dream Factory. We met with them when Sara was first diagnosed and their kindness was so comforting during such a terrible time in our lives. We spent many hours and days over the next year taking about all the amazing possibilities for dreams they might want to experience. It gave them something fun to focus on and look forward to. S
Read MoreWe met with Emilee and her mom earlier this summer, and she was very excited to tell us about her hero, Billie Eilish. Emilee loves Billie because she’s different than any other pop star out there, and for someone who feels different after her accident, Billie and her music make her feel less alone during the tough days.
Read MoreThe minute our son was born, the doctor asked us what his name would be and we said Apollo! She immediately said that it was quite the strong name to live up to. Apollo has never been a sickly child (quite the opposite!) but just before the age of 2, he started to have recurring ear infections. This continued for a while and at first we thought they were from swimming class, but when it persisted it was evident he needed ear tubes.
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