Meet Rainey

Meet Rainey

Rainey is a 13-year-old who loves sports and hitting the gym. He was diagnosed with "Ollier Disease" - a rare non-hereditary bone condition - at the age of 6.

A Letter from a Dream Parent

Rainey is like any other 13-year-old – he likes spending time with his friends, playing sports, and hitting the gym. He is charming and active – he is a powerful water polo and sledge hockey player, a competitive swimmer, a basketball player, and a fierce online gamer. 

But there is something that makes Rainey different than most kids his age. He was diagnosed with "Ollier Disease" a rare non-hereditary bone condition at the age of 6.

After a fall in little league hockey, Rainey underwent multiple tests and scans that revealed enchondromas irregularities in the bone. Over the years, Rainey has experienced multiple fractures, leading to over 100 hospital visits and hospitalizations. The irregularities of the bone and the unpredictable nature of the disease have taken a toll on healthy bone by deconstructing the composition and leaving severe deformity in his lower limbs. As result, Rainey is left more susceptible to compound fractures, mobility issues, and at significant risk for tumor transformation to cancer. He has been through a lot from such a young age.

In February of 2022, Rainey had a complex corrective surgery in Montreal Quebec to address leg deformity, leg length, and tumor management. Rainey and Mom were finally able to return home to Brandon in May 2022. There Rainey will continue with his recovery at home and head back to school. Rainey still has a long road to recovery and regular follow-up hospital appointments will be required out of province due to the nature of his bone condition.

With that said Ollier Disease does not define this young man! Rainey sports resilience, great strength, and a wonderful sense of humour! Now that he’s back home, he’s started thinking about what his Dream Come True might be - and Disney is at the top of his list! We are so grateful to each Dream Rider and Walker for being in Rainey’s corner and for helping to bring his Dream to life! Thank you.