Meet Colten

My name is Darrell Poirier. On November 14th, 2014 my wife Melissa and I, along with our son Liam were very excited to welcome our newest addition to our family, Colten. Or as we call him, Coco.

Colten came to us without any complications, but as Melissa was snuggling her beautiful new baby, she noticed a small scab on the back of his head. Little did we know, this would be the start of his battle with the ever so stubborn and rare Langerhans Cell Histiocytosis (LCH). At 4 weeks, another scab appeared on his neck. Then, by 8 weeks old, his torso was covered front to back.

Dreams, Dream Kids 2018 and OlderAndrew KussyDecember 2, 2018Colten

Meet Maia

On April 5th, 2017, our world came crashing down on us. Our 3-year old daughter Maia was diagnosed with Very High Risk Acute Lymphoblastic Leukemia. She hadn’t been herself for a few months, but there were no indicators that it was something so serious. A few weeks before her diagnosis, things changed.

She developed a fever that wouldn’t go away, had many bruises on her legs, no appetite, and little energy. The day we brought her to the Children’s ER, she had little blood spots on the bridge of her nose. Hours later, we were given the news that would change the course of our family’s life, and begin Maia’s fight for her own.

Blog, Dreams, Dream Kids 2018 and OlderAndrew KussyAugust 3, 2018Maia, Family Stories

Meet Ella

Ella has STXBP1, but there is so much more to know about her. Ella is a lovely, happy, and loving 9 year old girl. She loves to make friends, and has a soft spot for babies and dogs. She can’t pass by anyone who is crying unless she stops to comfort them, especially a crying baby.

Dreams, Dream Kids 2018 and OlderAndrew KussyJanuary 17, 2018Ella

Meet Ryder

Ryder was born in June of 2012. Like most parents, my husband Chris and I had no idea what the journey of parenthood was all about but we would soon find out that the unexpected could happen at any moment.

We didn’t learn what a warrior Ryder would become until 8 months later, when we were told something no parent ever expects: Ryder had Infant Acute Lymphoblastic Leukemia.

Dreams, Blog, Dream Kids 2018 and OlderAndrew KussyNovember 15, 2017Ryder, Family Stories

Meet Ava

Ava was born just over a month early on February 8, 2011. The doctors had hoped her condition would correct itself and, once born, she would be okay. Within a week, Ava relapsed and was in need of her seventh blood transfusion. We were told at this time for her to sustain life, she would need continual blood transfusions but still they said, “We don’t know why.”

Our family became a permanent fixture in Pediatric Cancer Care Manitoba. The weekly visits for blood transfusions and tests were always emotionally and physically draining. Ava was so very small and her veins were no bigger than a hair. It was not unusual for her to receive 6-8 “needle pokes” to find a vein that would take and hold an intravenous needle.

Dreams, Blog, Dream Kids 2018 and OlderAndrew KussyJune 2, 2017Family Stories, Ava

Meet Paisley

You see, Paisley has been battling an aggressive form of brain cancer off and on since she was eight-months-old – since she was just a baby. Paisley lived in the hospital for five months and 22 days during her first year of life. She has endured three difficult brain surgeries, countless chemotherapy regimens, and several blood and platelet transfusions.

Even though Paisley has been through so much, her beautiful smile still shines through at the end of each and every day. She inspires all of us with her amazing strength and resilience.

Dreams, Blog, Dream Kids 2018 and OlderAndrew KussyDecember 5, 2016Family Stories, Paisley

Meet Finley

Two years ago, at age 5, our son Finley was diagnosed with a craniopharyngioma, a non-malignant brain tumour. The tumour was creating pressure in Finley’s head, which caused severe headaches, lethargy and hormone disruptions. As this tumour is considered rare, there is no standard treatment for it and approaches vary.

Finley had three brain surgeries in the five months following his diagnosis. He developed several complications from these surgeries, including meningitis and two strokes. For a time, he was unable to move one leg and one arm and lost a lot of his vocabulary. In addition to the surgeries, Finley had countless scans, tests and many, many needles. The needles are the worst for Finley, regardless of how quick or gentle the nurses are.

Dreams, Blog, Dream Kids 2018 and OlderAndrew KussyJune 6, 2016Family Stories, Finley

Meet Annick

Since Annick was 4-months-old, our lives have revolved around medical appointments, blood counts, pills, temperature readings, emergency room visits and hospital admissions. Dealing with these situations and procedures has been hard for us, but we have also been struggling with the fact that this is how our lives are going to be from now on.

Since Annick was 4-months-old, our lives have revolved around medical appointments, blood counts, pills, temperature readings, emergency room visits and hospital admissions. Dealing with these situations and procedures has been hard for us, but we have also been struggling with the fact that this is how our lives are going to be from now on.

Dreams, Blog, Dream Kids 2018 and OlderAndrew KussyNovember 25, 2015Family Stories, Annick

Meet Mackenzie

My name is Tara and the little girl pictured here is my beautiful daughter Mackenzie. For the past three years Mackenzie has been bravely battling a very rare disease called Batten Disease. Mackenzie is only 1 of approximately 12 known children in Canada diagnosed with this disease. Never heard of Batten disease? You’re not alone - neither had we. This is why I would like to share our story and tell you a little bit about why The Dream Factory means so much to our family.

Dreams, Blog, Dream Kids 2018 and OlderAndrew KussyMay 25, 2015Family Stories, Mackenzie

Meet Colby

There has not been a more difficult moment in my life than learning that my wonderful son, Colby, has a life-threatening illness.   

When he was only 5-years-old, Colby was diagnosed with brain and spine cancer (medulloblastoma). This news was crushing, and yet I knew that I had to stay strong for my little boy, whose world was about to become so terrifying, filled with endless doctor appointments, hospital visits, countless needle pokes, and grueling treatments.

Dreams, Blog, Dream Kids 2018 and OlderAndrew KussyNovember 24, 2014Family Stories, Colby

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